People living with HIV experience in dealing with HIV/AIDS symptoms
DOI:
https://doi.org/10.33755/jkk.v7iSpecial%20Edition.262Keywords:
HIV, symptom experience, symptom managementAbstract
Aims : This study aimed to explore the PLWH live experience in dealing with HIV / AIDS symptoms.
Design : This study applied qualitative method.
Methdos : This study used descriptive explorative to explore the HIV symptoms experiences of PLWH in Padang West Sumatera, Indonesia. We conducted an unstructured interview among purposively sample PLWH. Inclusion criteria for participation were being male or female PLWH, residing in Padang, and age over 18 years. Data saturation was reached after the completion of 9 interviews. Content analysis was used to analyze and interpret qualitative data.
Results : The following themes emerged from the data: (a) face troublesome symptoms, (b) health literacy in HIV care, and (c) make efforts to heal.
Conclusions : PLWH experience HIV symptoms, continue to adapt and learn. The information about HIV symptoms experiences can facilitate caregiver to plan nursing care, identify education needs to help PLWH dealing with symptoms of HIV. This research can be the basis for conducting further research on how to manage the symptoms of HIV.
References
Freudenreich O, Goforth HW, Cozza KL, Mimiaga MJ, Safren SA, Bachmann G, et al. Psychiatric treatment of persons with HIV/AIDS: An HIV-psychiatry consensus survey of current practices. Psychosomatics. 2010;51(6):480–8.
Feng MC, Feng JY, Yu CT, Chen LH, Yang PH, Shih CC, et al. Stress, needs, and quality of life of people living with human immunodeficiency virus/AIDS in Taiwan. Kaohsiung J Med Sci. 2015;31(9):485–92.
Giri S. Quality of life among people living with acquired immune deficiency syndrome receiving anti-retroviral therapy : a study from Nepal. 2013;277–82.
Nyamathi AM, Ekstrand M, Yadav K, Ramakrishna P, Heylen E, Carpenter C, et al. Quality of Life Among Women Living With HIV in Rural India. J Assoc Nurses AIDS Care. 2017;28(4):575–86.
Vyavaharkar M, Moneyham L, Murdaugh C, Tavakoli A. Factors associated with quality of life among rural women with HIV disease. AIDS Behav. 2012;16(2):295–303.
Wilson NL, Azuero A, Vance DE, Richman JS, Moneyham LD, Raper JL, et al. Identifying Symptom Patterns in People Living With HIV Disease. J Assoc Nurses AIDS Care. 2016;27(2):121–32.
Webel AR, Holzemer WL. Positive Self-Management Program for Women Living With HIV: A Descriptive Analysis. J Assoc Nurses AIDS Care. 2009;20(6):458–67.
Schnall R, Wantland D, Velez O, Cato K, Jia H. Feasibility testing of a web-based symptom self-management system for persons living with HIV. J Assoc Nurses AIDS Care. 2014;25(4):364–71.
Makoae LN, Seboni NM, Molosiwa K, Moleko M, Human S, Sukati NA, et al. The symptom experience of people living with HIV/AIDS in Southern Africa. J Assoc Nurses AIDS Care. 2005;16(3):22–32.
Mulhall AM, McCormack FX. A 25-year-old man with fatigue, dyspnea, and pulmonary cysts. Ann Am Thorac Soc. 2015;12(1):120–3.
Coughlin SS. Anxiety and depression: linkages with viral diseases. Public Health Rev. 2012;34(2):1–18.
Zuniga JA, Bose E, Park J, Lapiz-Bluhm MD, García AA. Diabetes Changes Symptoms Cluster Patterns in Persons Living With HIV. J Assoc Nurses AIDS Care. 2017;28(6):888–96.
Wantland DJ, Mullan JP, Holzemer WL, Portillo CJ, Bakken S, McGhee EM. Additive effects of numbness and muscle aches on fatigue occurrence in individuals with HIV/AIDS who are taking antiretroviral therapy. J Pain Symptom Manage. 2011;41(2):469–77.
Liu Z, Yang J, Liu H, Jin Y. Factors associated with fatigue in acquired immunodeficiency syndrome patients with antiretroviral drug adverse reactions: a retrospective study. J Tradit Chinese Med. 2013;33(3):316–21.
Bengtson AM, Pence BW, Crane HM, Christopoulos K, Fredericksen RJ, Gaynes BN, et al. Disparities in depressive symptoms and antidepressant treatment by gender and race/ethnicity among people living with HIV in the United States. PLoS One. 2016;11(8):1–16.
Cho H, Baik D, Beauchemin M, Schnall R. Understanding the predisposing , enabling , and reinforcing factors in fl uencing the use of a mobile-based HIV management app : A real-world usability evaluation. 2018;117(June):88–95.
Schultz ASH, Temple B, Gibbons C, Preston J, Ronson G. Listening to Those Who are Living With HIV and Tobacco Dependence and Exploring Their Health Care Context. J Assoc Nurses AIDS Care. 2014;25(1):46–59.
Dawson-rose C, Cuca YP, Webel AR, Sol SS, Rivero-m M, Eller LS, et al. Building Trust and Relationships Between Patients and Providers : An Essential Complement to Health Literacy in HIV Care. 2016;1–11.
Ibrahim K, Songwathana P, Boonyasopun U, Francis K. The HIV/AIDS epidemic in Indonesia: Does primary health care as a prevention and intervention strategy work? Int J Nurs Pract. 2010;16(2):87–91.
Wang K, Chen W, Zhang L, Bao M, Zhao H, Lu H. Facilitators of and barriers to HIV self-management : Perspectives of HIV-positive women in China ☆. Appl Nurs Res. 2016;32:91–7.
Crowley T, Merwe RNA Van Der, Skinner RND. Adolescent HIV Self-management : Lived. 2019;30(4):7–19.
Stroumpouki T, Perrett S, Kasdovasilis P, Papatheodorou P, Paparizos V, Stavropoulou A. “ A journey towards acceptance ” : The process of adapting to life with HIV in Greece . A Qualitative study. Appl Nurs Res. 2020;53(April 2019):151249.
Noh MS, Rueda S, Bekele T, Fenta H, Gardner S, Hamilton H, et al. Depressive symptoms, stress and resources among adult immigrants living with HIV. J Immigr Minor Heal. 2012;14(3):405–12.
Webel AR, Perazzo JD, Dawson-Rose C, Smith C, Nicholas PK, Rivero-Méndez M, et al. A multinational qualitative investigation of the perspectives and drivers of exercise and dietary behaviors in people living with HIV. Appl Nurs Res. 2017;37:13–8.
